Call Our HELPLINE: 1-800-4PD-INFO (473-4636)

Parkinson’s Foundation Announces Five New Members of its People with Parkinson’s Advisory Council

NEW YORK & MIAMI — June 13, 2018 — The Parkinson’s Foundation today announced five new members of its People with Parkinson’s Advisory Council. The council consists of people living with Parkinson’s disease and care partners who contribute their personal perspectives and experiences with the disease to ensure that all foundation programs and priorities are based on real-world needs and evidence.

“One of the fundamental ways the Parkinson’s Foundation serves its community is through the People with Parkinson’s Advisory Council,” said John Lehr, Parkinson’s Foundation president and chief executive officer. “We welcome our five new advisors who have the expertise and leadership within their communities to help us make life better for people with Parkinson’s.”

The advisory council’s newest members have a diverse background of professional skills and experiences:

  • Justin Fields, MBA, of Knoxville, TN
    In addition to working full-time, Fields, who is living with young-onset Parkinson’s, strives to expand local Parkinson’s support groups to foster awareness and community outreach.
     
  • Radhika D. Iyer, JD, MSW, of Durham, NC
    Iyer, a social worker, lawyer and health care technologist living with Parkinson’s, previously served as a board member on the Parkinson’s Foundation Western New York. Iyer helps people with Parkinson’s use technology, such as applications, to better manage their symptoms.
     
  • Glenn Kasman, MS, of Mercer Island, WA
    A retired healthcare executive and textbook co-author, Kasman has remained active within his local Parkinson’s support groups and as a peer mentor since his initial Parkinson’s diagnosis in 2015.
     
  • Gretchen Rosswurm, MS, of Irving, TX
    Vice president of philanthropy for Celanese Corporation, Rosswurm is living with Parkinson’s. She blogs and writes short fiction.
     
  • Karen St. Clair, of Santa Fe, NM
    Retired CEO, St. Clair and her husband, Rob St. Clair, who is living with Parkinson’s, started a support group. She is a board member on the New Mexico Parkinson’s Coalition.
     

In addition to the five new PPAC members, as of June 1, the council appointed Kelly Sweeney of Portland, Ore., as the chair, and Leslie Peters of Colorado Springs, Colo., as vice chair.

“The People with Parkinson's Advisory Council provides a vital perspective to the Parkinson's Foundation,” said Kelly Sweeney, PPAC chair. “As people living with Parkinson’s and care partners, our voice is represented, and our needs are understood through PPAC. Our input is aimed at improving quality of life and impacting science to slow or even cure this debilitating disease.”

In 2006, the Parkinson’s Foundation became the first organization to establish a patient leadership group instrumental to establishing programs and research initiatives. A total of 15 PPAC members guide Parkinson’s Foundation priorities, identify unmet needs, provide input on programs, and serve as liaisons to the community.

About the Parkinson’s Foundation 
The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson’s community. For more information, visit www.parkinson.org or call (800) 4PD-INFO (473-4636).

About Parkinson’s Disease 
Affecting nearly one million Americans and 10 million worldwide, Parkinson’s disease is the second-most common neurodegenerative disease after Alzheimer’s and is the 14th-leading cause of death in the United States. It is associated with a progressive loss of motor control (e.g., shaking or tremor at rest and lack of facial expression), as well as non-motor symptoms (e.g., depression A mood disorder whose symptoms can include a persistent sad or empty mood, feelings of hopelessness or pessimism, irritability and loss of interest or pleasure in previously enjoyable activities. and anxiety). There is no cure for Parkinson’s and 60,000 new cases are diagnosed each year in the United States alone.

Wednesday, June 13, 2018
Terranova’s Stephen Bittel Donates $450,000 to Parkinson’s Foundation to Support Expansion of Centers of Excellence Network
Thursday, February 1, 2018

MIAMI – February 1, 2018 – The Parkinson’s Foundation today announced that Stephen Bittel, chairman and founder of Terranova, has made a $450,000 donation to support the expansion of the foundation’s Centers o

Largest Clinical Study of Parkinson’s Disease Reaches 10,000-Patient Milestone, Reveals Critical Learnings
Wednesday, January 10, 2018

NEW YORK & MIAMI - January 10, 2018 - The Parkinson’s Foundation today announced the enrollment of the 10,000th Parkinson’s patient and the discovery of critical new learnings in what represents the largest clinical study of Parkinson’s disease in history.

Parkinson's Foundation Mourns the Loss of Harold P. Kravitz and His Daughter, the Honorable Shelley J. Kravitz
Friday, January 5, 2018

Today we mourn the loss of two prominent figures in the history of the Parkinson's Foundation: Harold P. Kravitz, Esq. and his daughter, the Honorable Shelley J. Kravitz.

Parkinson's Foundation Mourns the Loss of Robert Burke, MD
Friday, January 5, 2018

The Parkinson’s Foundation mourns the loss of Robert Burke, MD, professor of Neurology at Columbia University, a Parkinson’s Foundation Center of Excellence. He was a former member of the Parkinson’s Disease Foundation (PDF) Scientific Advisory Board and led the PDF Research Center at Columbia.

Parkinson's Foundation Study Finds Gender Disparities in Caregiving, with Women at a Disadvantage
Monday, December 4, 2017

Largest Clinical Study Tracking Parkinson’s Patients Over Time Shows Women with Parkinson’s Have Fewer Caregiving Resources than Men with Parkinson’s

Parkinson’s Foundation Invests $60,000 to Develop Innovative Models of Patient Engagement
Wednesday, November 29, 2017

Six Awards Foster Patient-Driven Parkinson’s Research

Jesse Jackson Diagnosed with Parkinson's Disease
Friday, November 17, 2017

Rev. Jesse Jackson’s announcement today that he has been living with Parkinson’s Disease since 2015 further proves that receiving a diagnosis of Parkinson's is not a death sentence. There are many ways that people living with Parkinson's can control the symptoms of the disease with exercise and physical therapy to help maintain mobility and balance.

Update on Tozadenant Trial for Parkinson’s
Thursday, November 16, 2017

On 11/20/17, Acorda Therapeutics, Inc. announced that it is discontinuing the tozadenant clinical trial A research study in humans that aims to test a new intervention – this could be a drug, surgery or therapy like exercise or diet guidelines – to make sure it is effective and safe..

Parkinson’s Foundation Adds Marcia Mondavi Borger to Board of Directors
Tuesday, November 14, 2017

NEW YORK & MIAMI — The Parkinson’s Foundation today announced the election of Marcia Mondavi Borger to its Board of Directors.

Parkinson’s Foundation and Melvin Yahr International Parkinson’s Disease Foundation Announce Merger
Thursday, October 26, 2017

Parkinson’s Foundation Establishes ‘Dr. Melvin Yahr Research Award’ to Fund Neurology Fellows, Promote Leadership Diversity in Parkinson’s Research

Pages

mail icon

Subscribe to get the latest news on treatments, research and other updates.